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A week in the hospital
2025-Oct-11, Saturday 19:35
Poor Laila.
Not because she was injured or anything, B"H. We knew this was coming--they wanted to put her in for a week and take her off her meds so they could get some good EEG images of what her seizures look like when they're uncontrolled (relatively speaking). Somewhat worryingly, it happened almost immediately after they stopped her medicines. The next day, she had two seizures in the night, and the night after she had at least one and possibly two, so they put her back on her medicines and she hasn't had one since. When they talked to![[instagram.com profile]](https://www.dreamwidth.org/img/profile_icons/instagram.png)
sashagee about what they found, they said that:
That's not really why I felt bad for Laila, though--all her seizures happen during her sleep, I'm not sure she even knows she has epilepsy--why I feel bad is because she was stuck in a single room, attached to a set of cords hooked up to her head that she couldn't touch or move, for four days. I went to visit her andsashagee every day after work, and around the halfway point of the week she got so frustrated with her cords on her head that were itching and that we kept not letting her scratch--and when she did manage to scratch one, it came off and the tech had to come back in and reattach it. She ended up crying herself to sleep after an hour and a half of fidgeting and scratching. It was really awful to watch, and I'm just glad that when she woke up the next morning I heard that she was a her normal, cheery self again.
She has an MRI next week so they can get a better image of her brain and try to figure out exactly what part of her brain is causing the seizures. Once they know that, they'll better be able to figure out what to do.
Not because she was injured or anything, B"H. We knew this was coming--they wanted to put her in for a week and take her off her meds so they could get some good EEG images of what her seizures look like when they're uncontrolled (relatively speaking). Somewhat worryingly, it happened almost immediately after they stopped her medicines. The next day, she had two seizures in the night, and the night after she had at least one and possibly two, so they put her back on her medicines and she hasn't had one since. When they talked to
sashagee about what they found, they said that:So we're waiting to see what happens with her new medicine.
- Laila's seizures are all coming from a single area in her brain, which is good. A lot of the really difficulty-to-solve problems show up if you have bilateral seizures.
- Because Laila is currently on her fourth medicine and no previous medicine has controlled her seizures for longer than a few months, brain surgery is now on the table.
- They have a new medicine they're putting her on that is supposed to work really well with one of her current medicine, so the doctors are hopeful that this might be a solution.
- Laila's main doctor is also a professor of pediatric neurology, so they're the best person we could have taking care of her.
That's not really why I felt bad for Laila, though--all her seizures happen during her sleep, I'm not sure she even knows she has epilepsy--why I feel bad is because she was stuck in a single room, attached to a set of cords hooked up to her head that she couldn't touch or move, for four days. I went to visit her and
sashagee every day after work, and around the halfway point of the week she got so frustrated with her cords on her head that were itching and that we kept not letting her scratch--and when she did manage to scratch one, it came off and the tech had to come back in and reattach it. She ended up crying herself to sleep after an hour and a half of fidgeting and scratching. It was really awful to watch, and I'm just glad that when she woke up the next morning I heard that she was a her normal, cheery self again. She has an MRI next week so they can get a better image of her brain and try to figure out exactly what part of her brain is causing the seizures. Once they know that, they'll better be able to figure out what to do.
