Well, there's good new and bad news...

[dorchadas]

We spent most of Shabbat at the hospital with Laila hooked up to an EEG, trying to see if we could find more about the increase of seizures she's been having lately.

The good news: She's...not actually having seizures? Even though sashagee texted me at 4 a.m. that she had had a seizure, and even though the neurology nurses who came in to check up on her when sashagee pushed the button also thought that, the review of the EEG showed none of the characteristic brain activity of a seizure.

The bad news: Now we don't know what is going on. Even the attending physician mentioned that the video seemed very similar to a seizure, though it could also be that Laila was just having night terrors (which we know she has). But that led sashagee to ask how we tell between a seizure and a night terror, and the doctor didn't really have an answer for that.

We'll probably have to go in for a longer EEG where we start drawing down her medication and see if anything triggers an actual seizure. It's possible that none of her recent "seizures" were actually seizures and her increased medication isn't necessary, but it'll take more testing to tell that.

Comments

[matsushima]

That's really stressful. I'm sorry. I hope you get some answers soon.

[gwendraith]

That's so worrying and stressful for you both and not nice for Laila. I hope the medics can get to the bottom of it and put your minds at rest.

[theradicalchild]

I suddenly developed epilepsy in April 2021 I think due to a combination of an overprescription of psych meds by my first psychiatrist and the second Covid shot (since my first three seizures were accompanied by right shoulder dislocations where I go the shot) that altered my brain structure, and I've been on Vimpat since then. I was on Gabapentin due to nerve pain as well but have been able to cut down on that since nerve pain didn't bother me as much, and I'll eventually see if I can eventually end Gabapentin completely and maybe cut down on Vimpat. My mom knew that medication affects autistics like I differently (which is why I'm still angry at her and my idiot dad coercing me into psychiatry in the first place, and I'm never taking another SSRI ever again), and I agree with her, even though she's a hypocrite.

Sorry about that rant, you got me thinking.